Your Voice is Urgently Needed in the Fight.


Centers for Disease Control and Prevention (CDC)

COVID-19 Status Updates

What You Can Expect From Us

  1. The questionnaire will take about 5 minutes.
  2. Participation is anonymous. Your data is privacy protected.
  3. If at any time you want to delete your profile and data, it will be deleted.
  4. Data never leaves the platform.
  5. Updates on progress and discoveries will come directly to you.

Everyone is encouraged to participate—this is a borderless data sharing community for both those feeling healthy and those needing medical attention. The greater the diversity of participation, the richer the opportunities for discovery.

Share Your Lived Experiences to Help Fight COVID-19

By understanding both the specific circumstances and the general conditions of human existence, we can begin to detect health issues earlier and respond to outbreaks quicker.

Join us in the fight against COVID-19. Each of us can do more, in addition to hand washing and social distancing. Our lived experiences are invaluable in understanding the impact of this virus on health and quality of life.

The more we share, the better we’ll be able to understand long term health effects and prevent future pandemics.

Updated April 2, 2020
This info is updated regularly by the CDC at noon Monday through Friday.

Johns Hopkin’s University and Medicine

Coronavirus COVID-19 Global Cases by the Center for Systems Science and Engineering (CSSE) at Johns Hopkins University (JHU)

Simple Steps

  1. Create an account here.
  2. Protect your account via email and text verification for your security (i.e. Two-factor authentication).
  3. Review the consent form and choose to participate.
  4. Complete the questionnaire.
  5. Consider also connecting your electronic health records and uploading DNA information. This creates more robust opportunities for discovery.

COVID-19 is a respiratory illness caused by a new strain of a coronavirus called SARS-CoV-19

Since this is a new disease there is limited information regarding risk factors for the disease becoming severe. Based on currently available information and clinical expertise, older adults and people of any age who have serious underlying medical conditions might be at higher risk for severe illness from COVID-19.


Based upon available information to date, those at high-risk for severe illness from COVID-19 include:

  • People aged 65 years and older.
  • People who live in a nursing home or long-term care facility.

Other high-risk conditions could include:

  • People with chronic lung disease or moderate to severe asthma.
  • People who have heart disease with complications.
  • People who are immunocompromised including cancer treatment.
  • People of any age with severe obesity (body mass index [(BM]I)≥40) or certain underlying medical conditions, particularly if not well controlled, such as those with diabetes, renal failure, or liver disease might also be at risk.


People who are pregnant should be monitored since they are known to be at risk with severe viral illness, however, to date data on COVID-19 has not shown increased risk

Help stop COVID-19 by knowing the signs and symptoms

Fever — Cough — Shortness of Breath


Seek medical advice IF you develop symptoms AND

  • Have cared for, lived with, or otherwise had close contact with a person diagnosed with or suspected of having COVID-19 OR lived in, or have recently traveled from, an area with ongoing spread of COVID-19.
  • Call ahead before you go to a doctor’s office or emergency room.
  • Tell them about your recent travel and your symptoms.


The virus is thought to spread mainly from person-to-person

The virus that causes COVID-19 seems to be spreading easily and sustainably in the community (“community spread”) in some affected geographic areas. Community spread means people have been infected with the virus in an area, including some who are not sure how or where they became infected.

  • Perform hand hygiene frequently. Wash your hands often with soap and water for at least 20 seconds or use an alcohol-based hand sanitizer that contains 60 to 95% alcohol, covering all surfaces of your hands and rubbing them together until they feel dry. Soap and water should be used preferentially if hands are visibly dirty.
  • Avoid touching your eyes, nose, and mouth with unwashed hands.
  • Avoid close contact with people who are sick.

  • Stay home when you are sick.
  • Cover your mouth and nose with a tissue when you cough or sneeze with a tissue or use the inside of your elbow. Throw used tissues in the trash. Immediately wash your hands.
  • Clean and disinfect frequently touched surfaces daily. This includes tables, doorknobs, light switches, countertops, handles, desks, phones, keyboards, toilets, faucets, and sinks.


The best way to prevent illness is to avoid being exposed to this virus.

You Are the Best Source of Vital Information

Share your experience. The community’s power to come together to solve big problems has never been clearer. Your privately shared health information will power the Fight to End COVID program.

NOTE: This program is not intended to support personal medical decision-making including whether or not to pursue COVID-19 diagnostic testing.


Equipping everyone with accurate information will help individuals fight this battle with efficiency and purpose.

Personal Experiences From The Community

v.iAREus: The Modern Battlefield
By Ian Terry




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Promise Your World Your Love
By Sharon Terry


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Real-world information will help create a library to understand coronavirus infection. Scientists need your help to gather information to study long-term health effects, treatment effectiveness, and how we can best prepare for future disasters.

Gathering individual experiences, directly from those who are living them, during the COVID-19 pandemic is the best way to create this real-world information. You can help do this without leaving home. Fight this virus with information.

Want to Start Your Own COVID Community?

If your organization is thinking about building its own COVID-19 support community but you’re not sure how to begin, we’re here to help.


Disease InfoSearch serves as a resource for curated and crowd sourced disease information to help individuals access quality and credible information.